On Wednesday afternoon Joe came along to our Support Group Meeting and spoke to us about his experience of his Self-Directed Support story.
Joe is a 35 year old male, who, at the age of 9 was involved in an almost fatal car accident, which has left him with an Acquired Brain Injury and physical disabilities.
Joe moved to Dumfries from another part of the region and lives with his partner. He spoke of his experience with care workers from organisations, which were pushed to the limits with the time they could offer. Joe felt that he was losing control of his own life – even for things others take for granted, like taking a bath, or when to have his tea. Joe felt he was fitting in with other people, and this was really difficult for him. He recalled times where he would have his times for workers coming in to support him. Due to his ABI, Joe can become anxious if anyone is late, however, understands if he is notified. He would be left not knowing when his support was coming to him, and would not receive a quick text to say they would be late.
Through time, with Joe feeling that he was losing his grip on his life, and his partner taking unwell and requiring more care, Joe was introduced to SDS and was talked through the options of what could suit him. He instantly felt that SDS would work for him, an opportunity for him to take back control of his life, and enjoy doing what he wants to do. Joe was supported through the process by our service, who he gives thanks to, and felt confident and supported throughout the process.
Joe has now been receiving SDS from two PA’s who he identified, as they know Joe and Joe enjoys their company. He can now go to the football, days out – anything. Joe feels that his life has been enhanced so much since he moved from a care package to SDS.
Joe wrote a poem for us and has kindly allowed us to share it with you.
When I was young
I’d deal with whatever was there
As my disability begun
Was a case of dad was care
Doing as a parent does
Or are able to do
Now though there’s a buzz
Other options are available to you
Life moves on
Support too from
Controlled to self directed
It’s a statement too
I hope ratings are well up
What is created through
This type of support is space to develop
Now my dad is no longer with us
Life is set to teach
SDS let’s look at it as a plus
Dad Rest In Peace
Progressive things have to be
Change when I see ways
People who look after me
In this case PAs
Fit in life for me
I’ve done the plan
Helped so much by my wife to be
Now in my care I’m the money man
There is no such phrase as I can’t
Find the angle to get your best from
I’ve told you things from my slant
Would be happy to take any questions
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